Saturday, 17 June 2017
Thursday, 25 May 2017
It’s almost too impossible to comprehend the level of depravity and evil some people are capable of, and practically on our own doorstep.
What does come out of these tragedies is the resolute power of the human spirit. Its always so heartening to see people go above and beyond to help others in situations such as these, where really we act without thought for occasions we could never have prepared for. The way humans act when under extreme pressure, or in abject danger is almost overwhelming in its beauty sometimes.
When these moments happen I wonder if I am a good person. I wonder what I would do if faced with someone in pain or in a situation where I had to act now or run. Of course I would like to think should a situation such as this arise I’d do everything and anything I could to help another person, but we never quite know do we? I wonder if I could be selfless and put the needs of others before my own. Its what I’ve been brought up to believe should be the case, despite years of adulthood being advised we should 'look after number one'.
Well looking after number one hasn’t gotten us very far thus far. Presidents' aside perhaps.
Not to say I don’t care for myself as best I can, when I can, because I do and it's important to do so. But the idea that we should put ourselves first at every available opportunity grates on me. It's a common attitude and one which serves to alienate.
There are so many people in my life I care for; I love. I can’t even bear thinking about how it would feel if one of them was taken from me suddenly and without warning. It is the definition of incomprehensible.
Therefore I think I know deep down the way I'd act if faced with sudden tragedy - with bravery. Its what I aspire to at least.
It's easy to write off our behaviour when we aren’t called upon to be ‘heroes’. We can shrug off the responsibility or guilt at feeling helpless as we perhaps are not in a physical position to help. 'I wasn't there, what can I do?' Etc. It’s easy to do/think such a thing. We all do it – make excuses to ourselves and others as to why we can’t help.
But we can help one another. Every day. In even the teeniest of ways.
We can simply treat one another with kindness and without judgment.
We can utilise patience where normally we would act with frustration.
We can complement one another where normally we may internalise jealousy.
We can help one another by listening and being a physical and comforting presence instead of making others feel pressured and uncomfortable.
We can do all those things with barely any effort at all because they are all within us.
We don’t have to save lives to make a difference to someone’s life.
(Unless of course you are currently performing a life-saving operation then please stop reading this and continue with your important work).
We can make someone feel great just by being kind to them. That fact alone is so simple yet so effective it genuinely reduces me to happy tears. So when things are painful and hard in any area of our lives, let’s try and reach out to one another with kindness and compassion; it won’t solve any of the worlds greater problems, but it might just make life a little happier for those of us still lucky enough to be around.
Love always, K ❤️
Tuesday, 9 May 2017
Saturday, 29 April 2017
Sunday, 23 April 2017
My heart is full of love and lust for life. I want to live life to the full and I get angry and frustrated when it feels like that life is being stunted or shortened. But as I can’t use my anger to paint banners and march to Parliament to rid myself (and all of you) of this illness, I can use it to remind myself that simply feeling it means I’m alive. If that isn’t something to fight for I don’t know what is.
Sunday, 9 April 2017
Pain is not often the crux of my writing because I tend to favour focusing on talking about things I feel I have some semblance of control over; like my relationships, my mental health and my attitude towards my illness.
Pain is a whole other topic that I don't usually discuss in detail for many reasons; namely because I know a lot of people who are new to this disease read my ramblings and I don't want to terrify them, I don't like upsetting my loved ones, and I like to not think about pain when I can. Often it's none of those things and I simply can't deal with anything but my pain.
Pain is often nigh on impossible to quantify. It's also incredibly difficult to explain to someone on the outside of your own car-crash carcass.
My partner asked me earlier if I was OK when I truly wasn't and I said "Fine... actually no just in excruciating pain" which made him laugh - not because he finds my misfortune amusing, (he's not Christian Grey), but it was a hollow laugh where he acknowledged a bit of relief at me finally catching myself and being honest.
The reason the "I'm fine" often comes into play is because it's easier. Not in the long term I grant you, but in the short omg-i-think-im-dying term. It's exhausting being in pain and the last thing we generally want to do is talk about it.
My hair hurts today. My teeth hurt. How do you explain that to someone who doesn't experience pain on a regular if not daily basis? They think you are overreacting. They don't have anything to compare it to so they work backwards from their own experience and assume you must be exaggerating. We see you disbelieve us. We see you pity us. And we resent it.
We are forced to talk about pain, namely describe it, a lot. We have to do it to help our doctors solve any medical mysteries, to get the pain relief we need, to express why we are unable to do something/someone.
We have to tell if it's 'dull', 'stabbing', 'sharp', 'persistent' and various other words used to describe Law & Order. I don't really know what the majority of these words mean in relation to what I feel but I have to use something; it seems screaming incoherently and performing an elaborate death rattle gets you ejected from the ward and I can't risk that happening again.
The problem with talking about pain when you’re ‘in’ it, is that it allows room for little else other than feeling it. It can be genuinely difficult to even form a coherent sentence when you are experiencing it. I suppose that’s why doctors have developed these charts; the ‘how many out of 10’ and the ilk, for speed and accuracy in treating us. But those charts don’t apply when you are talking to people outside of the doctor’s surgery.
Pain is subjective and can be all encompassing. Tolerances of pain differ from person to person and can even change over time. When someone is chronically ill pain is a daily occurrence and something we don't always wish to wax lyrical about. That's why we try to adapt our lives around it. Sometimes that's not always possible but on good days, good moments, it is.
We might not tell you we're in pain sometimes and that's OK. It's our choice and it might just be our way of distracting ourselves; so please be patient and don't expect miracles from us. Don’t let us see that we are frustrating you if we are. I know that may seem selfish but we honestly won’t have the energy to get into any form of debate with you, from brokering a trade deal between countries to forgetting to take the bin out, it’s all impossible.
Give us a bit of time to feel ‘normal' again once the worst is over and don’t make us feel that we should apologise for it. Even though I’m 99.9% sure we will later anyway.
Just be kind to us, it really is that simple.